The New York State Department of Health (Department), Division of Family Health, Bureau of Child Health, seeks to improve health outcomes for adolescents and young adults (AYA) ages 12-21 with sickle cell disease (SCD) throughout their care and treatment, including as they transition from pediatric to adult health care providers and strive to achieve self-care. It is anticipated that up to three Department approved Article 28 Hemoglobinopathy Specialty Care (HSC) Centers will be awarded funding to provide social support and assistance to navigate health systems and resources. This will include partnering with Health Homes as appropriate, and support for continued engagement with the health care system, thus enabling a smooth transition into the adult care system through care coordination and navigation services.

Approximately $850,000 is available to support this five-year initiative. The Department anticipates awarding up to three contracts for a five-year period, with an expected term of October 1, 2023 through September 30, 2028. The award for each contract is expected to be up to $56,666 annually, subject to state appropriation authority and acceptable performance and compliance with all contract requirements. The awards will be made to the highest scoring applicants.

In order to apply, an Applicant must be an Article 28 HSC Center certified by the NYS Newborn Screening Program at the Department. The list of certified centers may be found at http://www.wadsworth.org/programs/newborn/screening. (Search Specialty Care Centers | New York State Department of Health, Wadsworth Center). An Applicant must also be prequalified in the New York State Grants Gateway, if not exempt, on the date and time applications are due.